NEED A SHUNT? GOT A SHUNT THAT JUST DOESN’T SEEM TO BE WORKING?
WATCH THIS VIDEO
I got my first shunt in March 2017. It was miserable, not because there was a problem with the shunt itself, but because I had CSF leakage around the proximal catheter under my scalp. This absolutely wrecked the ability of the shunt to regulate my ICP. I transitioned rapidly to unstable Intracranial HYPOtension, which I found to be as equally miserable as Intracranial Hypotension in its own special ways.
Finally, after tests and experiments, Dr. Kenneth Liu figured out I was leaking CSF around my shunt catheter. The technical term is “external communicating hydrocephalus”; I just called it “Juice Box Head” after the way juice leaks around the straw of those drink boxes and pouches if you squeeze them too hard.
The following video is very tongue in cheek. It’s meant to be. I needed short, sweet, not uber-technical, which I can do all too well. Disclaimers: the scale of the burr hole and “catheter” (IV tubing) are larger than the actual items. The “Bone Plaster” I used is plumber’s putty. The “thin titanium plate” is a piece of galvanized flashing. This video was shot in on my dining room table where I was both “surgeon” and “camera operator” (hence, the shaky sections). That said, it is an accurate representation of how Dr. Liu solved my leak.
Why am I showing this? Because the difference between leak and no leak was immediately noticeable, and the magnitude of improvement was nothing short of miraculous (yes, I used the “M” word). It has made all the difference in the world for me to have a shunt that actual controls my ICP without an unwanted leak that renders the shunt all but useless. Big Statement: I am fairly certain it is an issue for other shunt patients, or may become an issue for those who need a shunt. I cannot emphasize the importance of attention to this simple process, nor the risk being taken by ignoring it. I know of whence I speak on many levels…
Without further ado, the masterpiece. Let it load, hit the full screen icon in the lower left hand corner, & turn it up – the audio worked out supernaturally well with this bit: